Archives: 2016

Open Science initiative – Exceptional Donation of $ 20 Million

post

Exceptional donation of $ 20 million donated to the Montreal Neurological Institute and Hospital by the Tanenbaum family. The creation of the Tanenbaum Open Science Institute will develop and promote the Open Science initiative.

 Http://mcgillnews.mcgill.ca/s/1762/news/interior.aspx?sid=1762&gid=2&pgid=1604

We are very proud of the special mention of the partnership between the Quebec Parkinson Network and the CBIG-Repository biobank (Neuro Open Science Clinical Biologic Imaging and Genetic Repository) , as an example of the successful development of the Open Science initiative.

“The CBIG-Repository is already partnering with the Quebec Parkinson Network.”
“That pilot project is the best example of what we hope to do,” says Karamchandani.

“We have more than 100 patients [with Parkinson's disease] who have altruistically agreed To donate to CBIG Fifty of these patients will receive high-level imaging and all of this will be anonymous, de-identified and placed on a secure server where researchers with an ethically valid and scientifically valid They need to answer their research questions. “Jason Karamchandani

This is a magnificent mark of recognition for the work accomplished in recent years and a tremendous encouragement to continue it.

Are These Symptoms Due to Age, Parkinson’s or Something Else?

post

“‘How do I know if my symptoms are from ‘old age’ or Parkinson’s?’ This is a reasonable and commonly asked question that can be challenging to answer. Parkinson’s disease (PD) is typically diagnosed around age 60 or later, so it’s normal to wonder whether associated symptoms – especially pain, stiffness, and memory or thinking problems — might be due to getting older. It’s also worth considering separate medical conditions — such as arthritis, lower back pain (typically caused by “degenerative disc disease” or arthritis) or Alzheimer’s dementia — that can occur more often with aging.”

To read more on this very important aspect of PD diagnoses, click below:

https://www.michaeljfox.org/foundation/news-detail.php?ask-the-md-are-symptoms-due-to-age-parkinson-or-something-else&os_cid=fb-a300P000005r1Ld&s_src=MJFFfb&s_subsrc=age_symptoms 

Parkinson and its Stigma: Coping Together

post

It’s sad to say that Parkinson’s patients often feel that there is a stigma associated with their disesase. However, there are ways to cope.

“I recommend surrounding yourself with a network of people dealing with the same problem… I didn’t want to be pitied or stared at, and I didn’t want the world to change for me and my condition,” [Nancy Mulhearn] explains.

To read more on this issue and how to deal with it, read on below:

https://www.michaeljfox.org/foundation/news-detail.php?the-stigma-of-parkinson-disease&os_cid=fb-a300P000005r14o&s_src=MJFFfb&s_subsrc=pd_stigma

What’s new in research on Parkinson’s disease?

post

November 9, 2016 – 1:30- 2:30pm
Webinar – French
Dr. Louis-Eric Trudeau, researcher and member of the Quebec Parkinson Network will host the upcoming webinar.

—-

The causes of Parkinson’s disease are still not known. Several researchers fortunately working to remedy this situation, some here in Quebec! Since this area is very technical and that the number of research is important, it can be difficult to navigate.

This webinar will allow participants to answer the question: What’s new in research on Parkinson’s disease?

The goal of this webinar is to inform in research and making it accessible to all. This is a good way to know what is done everywhere in the world, but also in Quebec, where research is very active.

A question period will follow the presentation.

https://lereseauaidant.ca/event/quelles-sont-les-nouveautes-en-recherche-sur-la-maladie-de-parkinson/

Karate to Combat Parkinson’s

post

In Gatineau, a karate class is helping Parkinson’s patients deal with symptoms.

Read on below, link in French:

http://ici.radio-canada.ca/sports/PlusSports/2016/10/18/001-karate-parkinson-marcel-gauthier.shtml