Archives : January 2017

Open Science: TED Talk by Aled Edwards


This new TED talk discusses the huge, life-saving benefits of conducting research in an Open Science framework.

“Aled Edwards is the founding CEO of the Structural Genomics Consortium (SGC), charitable company based in Toronto that carries out open-source research to support the discovery of new medicines, with support from the public and private sectors.”

To know more about Open Science and to hear what Edwards has to say, watch the video at the link below.

Depression and Anxiety in Parkinson’s Disease


“Depression and anxiety are common non-motor symptoms associated with Parkinson’s. They can be experienced after a diagnosis or while adjusting to changing symptoms, but they also are part of the underlying disease itself. ”

To know more about this difficult aspect of PD, watch the video at the following link, part of the Michael J Fox Foundation’s Ask the MD segment.

2017 Living Hope Provincial Congress: Parkinson Quebec


Dates and programs of the 2017 provincial congress have been announced! Under the honorary chairmanship of Dr Isabelle Beaulieu-Boire and Dr Jean Rivest, the Living Hope congress will address subjects in the area of quality of life for people living with Parkinson’s Disease and their caregivers, as well as aspects relating to research and treatments.

The congress is open to all and will offer you, amongst other things, 24 lectures (6 in English), community testimonials, round-table discussions, renowned guests, the presence of the scientific community, a vendor exhibition, a panel as well as an opening and closing banquet.

Registration will open shortly! Stay tuned! To learn more about programming before Christmas, subscribe to Parkinson Quebec’s Facebook page!

The 2017 Living Hope provincial congress, from May 3 to May 5, 2017 at the Delta Hotel in Sherbrooke – 2685, King St, Sherbrooke, Québec, J1L 1C1

A February Event Dedicated to Parkinson’s Research


Don’t forget to reserve an evening this February to come learn about Parkinson’s Disease. An evening lectures will take place on February 21 for the scientific community, the Parkinson’s community, and for interested students.

On February 21, come to the Université de Montréal for a symposium organized by Parkinson Québec where the main speaker will be Dr. Ronald Postuma MD, M. Sc, a neurologist specialized in Parkinson’s disease. He will present his research on caffeine and Parkinson’s disease.

To register for the Parkinson Quebec symposium, click here.
For more information about the symposiums, contact us at



Lehr Charged with Advancing Foundation’s Mission to
Accelerate the Science and Care for Parkinson’s Disease

NEW YORK & MIAMI – January 10, 2017 – The Board of Directors of the Parkinson’s Foundation today announced its selection of John L. Lehr, a noted nonprofit leader, as chief executive officer. The hiring follows the recent merger of two Parkinson’s nonprofits with rich histories: National Parkinson Foundation, headquartered in Miami, and Parkinson’s Disease Foundation, headquartered in New York.

“Bringing John on board signals our commitment to accelerating the science and care for Parkinson’s on behalf of the millions of people across the globe living with the disease,” said John W. Kozyak, Esq., board chair of the Parkinson’s Foundation. “We are confident that his extensive experience, knowledge and skill – as well as his passion for our mission – will add momentum to our fight against Parkinson’s.”

Lehr brings to the Parkinson’s Foundation more than two decades of nonprofit fundraising and management experience. He has a proven track record in the voluntary healthcare and medical research sectors, having led successful fundraising campaigns and implemented programs that have advanced the missions of organizations working to improve the lives of people living with chronic disease.

“I am honored to lead the Parkinson’s Foundation at such a pivotal time – one in which the needs of the community and potential of science are greater than ever,” Lehr said.   “Throughout my career, I have focused on ensuring that nonprofits have the greatest impact on the communities they serve. As CEO, I am eager to listen to the Parkinson’s community and address its concerns with equal urgency.”

Lehr will work closely with the board to guide its mission to invest in promising scientific research toward ending Parkinson’s disease and improving the lives of people with Parkinson’s, and their families, through improved treatments, support and access to the best care.

Lehr was selected in a comprehensive process led by a search committee of the board with support from Russell Reynolds, an executive search firm.


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About the Parkinson’s Foundation 
The Parkinson’s Foundation is working toward a world without Parkinson’s disease. Formed by the merger of National Parkinson Foundation and the Parkinson’s Disease Foundation in August 2016, the mission of the Parkinson’s Foundation is to invest in promising scientific research that will end Parkinson’s disease and improve the lives of people with Parkinson’s, and their families, through improved treatments, support and the best care. For more information, visit or call (800) 4PD-INFO (473-4636) or (800) 457-6676.